Showing posts with label Limb Body Wall Complex. Show all posts
Showing posts with label Limb Body Wall Complex. Show all posts

Tuesday, January 27, 2015

She Brings Joy

by Sarah Grandfield-Connors

I have had a difficult time writing something out for this project, as I am going through a low time. Even after four years, there are low times, when the sadness leaks out of you and touches everything around you.

I wanted to begin with an introduction and a background to my daughter's story. I hope to write here again, and would love to know that when I do- anyone reading will see the human being that my baby was, instead of the still images of a photograph.

When my Beatrix died, I shared her story with every organization that I could- what I will share here will be similar to what I wrote then, with some changes as appropriate, as an introduction for you, and a reminder for me. That even with the low times that followed, there was beauty in that storm.

There are so many important things that I would like to share about our story. The journey we went through to have our baby is just as important as what happened after she was born. I sometimes forget about that, the life that she lived before she lived her life.